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Genetics & the Law

Guide to support students in Genetics and the Law (Law H520) and Legal Ethical, And Social Issues in Public Health Genetics (Law H504, cross-listed in PHG, MHE, and HSERV).

Federal Government Sites on Genetic Research & Policy

Professional Associations & Advocacy Groups

Organizations Concerned with Particular Diseases or Conditions

Many organizations concerned with particular conditions or diseases are involved in advocacy. Their websites include reports, policy statements, and information about current concerns.

For instance, if you visit the website of the Cystic Fibrosis Foundation, you'll see a menu for ways to "Take Action" that includes "Become an Advocate." Clicking around, you can get to the organization's policy agenda, a description of current initiatives, an article about the organization's advocacy achievements, and a page linking to briefings, testimonies and regulatory comments.

Universities & Research Centers